Useful Tips

I felt bombarded with all the information I got with all my daughter's appointments so I set up 2 folders. One has all her appointments, reports, contact details of everyone involved in her care; the other has all the leaflets I have collected at family days. I also found it useful investing in a video camera and filming my daughter. It would be difficult at times to describe things to everyone that saw her so I thought it best just to film her and this is something I am still doing nearly 3 years later.